‘Our Journey To Equality’ by Steven Mifsud, Founder of Direct Access Consultancy

Steven Mifsud

Mr Steven Mifsud

Slowly approaching the tenth birthday for Direct Access Consultancy, it has been an amazing adventure, but I can tell you it wasn’t easy. Over the last 10 years, we grew and grew, battling difficult times and overcoming tall obstacles, now we have provided access audits and access consultancy for over 10 Local Authorities/Councils, over 10 housing associations, over 650 schools and more than 2500 buildings.

My name is Steven Mifsud, I started my higher education life with an architectural degree, little that I knew, I would end up here running the company I started so many years ago. A few years after I finished the last minute exams and late night flat parties, I started working for Chester City Council (now known as Cheshire West Council) as an Access Officer. This effectively acted as my entry point into the disability access world as I was sent to take care of many community projects. Though it was a great experience, I was beginning to get fed up with the speed of that I was limited to by the red tape.

During my time as an Access Officer, I was head hunted by a large consultancy based in London, which gave me some great opportunities such as surveying land mark buildings. Within this time, I also managed a 300+ access auditing project for Brighton & Hove Council. Times were good now, but I felt something was missing. Unfortunately I was extremely frustrated that I was never with my family, more particularly my daughter Georgia. The work was also extremely deadline driven which a lot of the times meant to compromise the quality of the access audit reports in order to retain employment status.

Now, this is the good bit, one day I was approached by a large department store to undertake some access audits for them; thus how Direct Access Consultancy was born. After working for the consultancy in London, I learnt that access audits deserve precious time rather than rushing each project in the goal to finish more jobs, quality over quantity.

One job after another, year after year, the company grew and expanded and is now lead by myself with Judith acting as my communication support worker due to my hearing impairment. There has been some highs such as delivering a speech in Qatar on Accessible Sports on the behalf of the UKTi and extreme lows such as fractured family relationships due to my loyalty to Direct Access. The highest points in 10 years was not being privileged to access audit world famous sites such as The Roman Baths but hearing real sound for the first time in my life by having a Cochlear Implant and meeting my wife Judith.

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Judith & Steven.

I have built a company that is unique to our competitors, a disability access auditing service provided by people affected by disabilities, thus a unique edge and perspective to access projects. Disabled access auditing is for disabled people, so wouldn’t it make sense that disabled people are the best people to consult on how their lives can be made easier?

Yes, this is effectively my autobiography, but my life is basically the story of Direct Access Consultancy as I’ve devoted the majority of my working life being in the company. I love what I do as it combines my personal insight into disability, my passion for architecture and contributing to creating a society that is equal and fair regardless of what your physical difficulties may be. Here is to another 10 years of leading Direct Access Consultancy.

Steven Mifsud

Founder of Direct Access Consultancy

Read more about what Steven’s company does – http://www.accessaudits.com

They also do a lot of access audits for schools, over 800 to date.

One of their current key projects  – http://www.accessaudits.com/direct-access-appointed-access-consultants-for-new-victoria-square-development-woking/

A bit about what their access audits are about and what they entail – http://www.accessaudits.com/access-audits/

Some of the clients Steven have worked, including clients like Bodelwyddan castle, Roman baths etc etc http://www.accessaudits.com/our-clients/

Steven has also done a bit of free work (when he can) to help his local community such as Nantwich museum http://nantwichmuseum.org.uk/direct-access-audit/

The EU Referendum Leaflet

On the back of our recent post supporting Drip Media’s survey, a petition was also engineered, despite low demands; it is only fair a visual version of the EU referendum leaflet is/was made.

Whilst we are eagerly waiting for the official government version, which we hope will be out very soon, RAD has made one of their own videos (please note, this is not the official government version) from written information available to them.

An Open Letter To Steve Powell, The CEO Of SignHealth

Dear Mr Powell, 

We are writing to you as an open letter from The Tree House group on Facebook and blog (https://viewsfromthetreehouse.com/), we are disappointed to find that there is lack of subtitles on videos that SignHealth have produced.

We would like to remind you that The Tree House Group represents some of the 10 million deaf and hard of hearing people in the UK and we promote diversity, which means we welcome people of all backgrounds including all communication techniques they use. No one is inferior or superior to one another as we are all in the same situation.

We want to make a few points regarding your lack of subtitles on your videos

• There are approximately 10 million deaf and hard of hearing people – 1 in 6 people in the United Kingdom whereas there are approximately 17000 BSL dependent users.

• We believe that subtitling the videos will enable SignHealth to reach out more people who may be deaf oral, use signed supported English, hands on signing for deafblind. Reaching out to the deaf/deafened/hard of hearing people will make your cause stronger than ever because you have more people supporting the cause.

• We know for a fact that deaf people with various communication mechanisms do have problems with healthcare,

o Not enough time to familiarise with a doctor

o Inability to lipread doctors with accent

o Wrong assumptions about lipreading and mistaking that we actually understood everything.

o Inability to book communication support in urgent appointments

o Lipspeakers in short supply

o Having to use family, friends for communication support and many more to list.

• We want to be part of and support SignHealth, because of the problems we all have encountered in the NHS, but not having the subtitles in BSL videos makes it exclusive. It makes us feel that we are being discriminated for using other forms of communication not BSL.

• We would like to ask what are SignHealth’s aims? Are you focusing on the deaf people as whole or deaf people who rely on BSL?

We hope SignHealth would consider our request for subtitles on your videos to be taken into consideration, because we strongly believe that you will reach out to more deaf people who require your help. There are softwares that subtitles can be created on videos, as most of us have managed to do it when we make videos for The Treehouse group. If you wish to know more, please contact the admins of Treehouse Group.

We look forward to hearing your response on this issue within 7 days.

Yours Faithfully

The Tree House team;

Sara Jae,

Sebastiaan Eldritch-Böersen,

Andrew Arthur,

Daniel McManus,

Paul Leonard,

Michelle Hedley,

Kimberley Lucas,

Claire Leiper,

Jamie Danjoux

In addition, members of the public.

 

Diversity & Inclusion – Love Has No Labels

This video left me feeling glimmers of hope that the people of today’s world want to be inclusive of all the diversity around us in order to make it a better place. Ironically, the video has no captions or audio description but otherwise the video is easy to watch and follow. It may leave you feeling a tad soppy.

Make love, not war 🙂

Love Has No Labels.

Views From The Velvet Prison by Mervyn James.

Mr Mervyn James.

Mr Mervyn James.

The culture gig is, basically, a response to isolation, and controlled environment approaches… not in-built genetic norms of any kind, since only point 2% of the entire deaf area with profound loss that relies on sign language, has a true genetic background. I do not think we do deaf children or deaf adults a service by pandering/recognising that Isolation as an acceptable norm ever.

It can be seductive to think we/they are ‘with own kind’, but the ongoing effect and lifestyle is isolation.  Many years when I started out and went profoundly deaf, I called this ‘The Velvet prison’… cool, cosy, and a defence and ultimately a refuge against a hostile hearing world, mainly because the belief is it is too tough out there… it certainly was for me at that time.

Now, I’d rather push access and education to break that up, so true equality and inclusion is seen in real time and not an occasional favour both mainstream and the deaf sign users go with occasionally, ‘look busy we are being watched..’ sort of thing. To use a rugby term, it was ‘going through the phases.’ but then failing to follow through to score a try at the end.  Playing the game not really expecting an end result.

There is no access, no equality, and no inclusion unless, we are all in it together, if that isn’t the case, then what we see is a ‘secular or segregated’ approach, whereby those who feel they are unable to avail themselves of the ‘bridges’ of communications, or utilise the laws that exist to enhance integrations between hearing and deaf, who are then doomed by default, never to take any active part in their own inclusion.

For many adults it is already too late, you can’t teach some of these old dogs new tricks, and they are perfectly content to stay as they are, ‘all deaf together’ or ‘all hearing Impaired’ together or even ‘all hearing together.. well, all of some or other together… but we do need to stop these views being portrayed as a virtue and part of being a deaf or person with other hearing loss. Isolation is not a cultural trait, it is a norm forced on people by a lack opportunity to break out, via discrimination, or oppression, or simply by personal choice.

That need not be the case for all but a very few. It has to be said, many with hearing and hearing loss, but not profoundly deaf, do seem to adopt the ‘let’s leave them to it..’ or ‘cest la vie..’ approaches, and they/we should not be doing that because it feeds the view isolation is inevitable, or even a lifestyle choice and right.

Occasionally it can look like ‘Not our business…’ and then divides become apparent, acceptable and very real.  In reality the ‘non-deaf’ with all their varieties and degrees of loss are at present not visible, unlike others who are HIGHLY visible through sign mediums, but the ‘non-deaf’ are the least empowered of all…. If you talk about ‘Invisible’ disabled then, that is us, it certainly is not someone deaf who signs who cannot HELP but be visible.

It may account for people who represent those areas latching on to aspects of sign so their issues can be seen too. It doesn’t work given the huge profile of signed language currently, and the awareness approaches that seem to be opposing each other by virtue of the fact they use different means to communicate, and/or a mixture of such approaches that the more ‘purist’ of deaf advocates don’t approve of. There is now a division of communication approach that polarises people. Deaf awareness never worked, never will.

Probably the biggest issue all with hearing loss now face, is how to pursue own access to the ultimate aim of acceptance and integration. Utopia will not happen. Even Martha’s Vineyard, which was held up as a yardstick to true deaf-hearing communal acceptance, disintegrated when that isolation was broken. In the Middle East, a whole tribe of nomads near Israel are near all deaf, and face the same outcome.

Perhaps herein lies the real reason for the pursuit of culture with some deaf, if that isolation, (which is the glue that holds the deaf ‘community’ together), is broken, then, so is their social base destroyed, certainly put under extreme pressure, who wants to be alone ? A powerful reason to pursue a cultural ideal.

~ Mervyn James.

Who can also be found at “At The Rim.

The Deaf Community – An Important Message.

Many years ago, deaf people were not considered to be in a position where they could be a proactive member of society. For at times, families would hide their deaf child away because they felt ashamed simply because they had a child who happened to be deaf or even worse, were not diagnosed as deaf but for want of a better word, dumb. Some of these people were mistreated, abandoned and abused.

Looking around us today, it is a completely different picture. It is not yet perfect but the deaf now have a community which has come a long way and I am using the word “community” and not “culture” because the word “culture” is rather complex and divisive. When one uses the word “culture”, it is in reference to customs, habits, language and many other factors that belong to a particular group of people who are different to others.

Sign language alone should not form the basis for a “deaf culture” because deaf people are born into a culture that already exists – if you are born into the British culture then by default you are British. Bearing in mind, that sign language is derived and based on our mother tongue. Both deaf and hearing people as well as monkeys and apes can use this form of visual language. On the other hand, it would be wrong of us to assume anyone who may be hard of hearing, deafened, deaf or deafblind automatically know sign language. To presume that everyone deaf can sign is not correct and it is misinforming our society of today.

A baby who has been born deaf into a British hearing family, growing up with the family’s customs and ways, can he suddenly deny his family’s culture and refer to himself as deaf only? Insinuating, that because his family is hearing, they do not belong to a “deaf culture” despite having tried their very best to provide their child with an enriching and balanced upbringing, encouraging him to speak, sign and integrate with his peers regardless of whether they were deaf or hearing.

It would be extremely hard for me to separate myself from the people that taught me everything I know and in the process hurting them in return by secluding myself to another particular culture, especially one that we find difficult to define.

To put it simply, we have habits (no, not those long brown gowns!) which is interpreted by some as “deaf culture”, or more appropriately termed as learned behaviour. On the contrary, we can learn it, be aware of it but it does not mean we have to adopt it.

Sadly, there are deaf parents who hope their child will be born deaf because they believe they belong to a deaf culture only and by having a hearing child, they would break that familiarity to what they only know. This is an extreme stance to have and it is one that is potentially damaging.

By simply saying to hearing people “If you do not make the effort to communicate with me then I will separate myself from you all together” is so not the route to take; the more they see of you, the more they are forced to understand you. I say forced because hearing people have the option to learn at least some basic sign language like finger spelling which should at least be made part of today’s school curriculum.

One (i.e. Paddy Ladd and his Deafhood book) could argue that residential schools for the deaf is the main continuity for “deaf culture” being learned – perhaps forty years ago but not today. Because forty years or so ago, the differences in technology, segregation and concentration then and now could not be more evident unless influenced and taught otherwise by the older generations.

As stated on NDCS website, “90% of deaf children are born to hearing parents with little or no experience of deafness or knowledge of how to communicate with a deaf person”. The other 10% would probably grow up with sign language as their first language in cases where the deaf parents also sign rather than having to wait until they have contact with other deaf children, which is normally the experience of the other 90% at school. Approximately, nowadays, 90% of those deaf children born severely or profoundly deaf are likely to be implanted before their second birthday – More than 60% of the children at Mary Hare School now have implants.

Where hearing aids and implants are concerned, people have feared deaf identities and the linguistics will be lost, “I am still deaf” one may remark. Of course, you will still be deaf because your hearing aid(s) or implants will not be in use 24/7 and you will have grown up as a deaf person, lip-reading, signing (if able to). The deaf majority at present, thankfully, now sees a CI as a superior hearing aid, which actually has very little bearing on “deaf culture” despite a tiny percentage that are anti-CI and vehemently trying to turn people against CI’s by using an excuse along the lines of “social cleansing”.

There is a term albeit rarely used, which is the “hearing brain”. I understand this to mean when someone loses hearing later in life after growing up living life to the max as a hearing person possibly could, has been fortunate to receive a cochlear implant, only to characteristically revert to whom they grew up as. Do we or rather, should we put that down to “hearing culture”? When it is whom they have learnt and happen to be, within themselves and society just as we are who we are and that others have taught us who to become.

My fear of seeing people belonging to one culture and denying everything, everyone else around them is that there is a danger of separating ourselves from the mainstream culture we have to live in and share.

In being exclusive, this will undo all the hard work that has been achieved before us, by the many generations of deaf people. They are the ones who struggled and fought hard to finally be accepted within the mainstream society today. If anything, we should continue to strive albeit much harder to keep this sense of inclusion and integration developing but there is a cycle, especially where learnt behaviour is concerned, reoccurring in many senses that people need to break out of this habit, especially if they want to advance further as an inclusive and diverse community.

There is a still a lot that has to be done, in terms of educating society that we are all equals and just as capable but not by creating and realising any further divisive ideas. With positivity, forward thinking and unity, this can be achieved by the deaf community but only if the will is there.

~ SJ (Sara Jae)

Ten Reasons Why We Would Like Change.

We are all too aware that changes need to be made and asks ‘What would you like to see be changed?’

(SJ says, “I would like” because her grandmother always said, “I want – never gets”!)

Here is a list of some of the changes the Tree House dwellers long for;

I would like to see the deaf community put their differences aside and work together to improve access. I wish they would realise no one is superior or inferior to another.

I would like to see a bridge built between people of every walk of life (deaf and hearing for example) working together to establish common ground and to work out ways to bridge gaps that exist between the two camps.

I would like to see the deaf community unite regardless of different communication abilities to work towards the same aims because that would make inroads more.

I would like to see a day when being deaf does not feel like being punished for something you did not do!

I would like peace because I am a troubled person.

I would like people to stop having one rule for themselves and another for others because that is just selfish and unfair.

I would like change to happen from the top down so everyone is equal regardless of whether they are deaf, HoH, deafblind, blind, hearing or different in any other way.

I would like to see respect and tolerance between all human beings across the planet, and the gap between rich and poor hugely reduced.

I would like people to realise just how diverse the deaf community is and that not everyone is reliant on the same assumed method(s) of communication.

I would like to see the deaf community and the hearing world to look at the full picture instead of looking at one spot constantly and focus on the diversity cos we all are diverse and lastly unique…

~ SJ (Sara Jae)